{"id":6256,"date":"2022-04-21T11:46:14","date_gmt":"2022-04-21T10:46:14","guid":{"rendered":"https:\/\/www.sense.org.uk\/?page_id=6256"},"modified":"2026-04-22T11:54:25","modified_gmt":"2026-04-22T10:54:25","slug":"charge-syndrome-support-and-management-from-birth","status":"publish","type":"page","link":"https:\/\/www.sense.org.uk\/information-and-advice\/conditions\/charge-syndrome\/charge-syndrome-support-and-management-from-birth\/","title":{"rendered":"CHARGE syndrome: support and management from birth"},"content":{"rendered":"\n<p class=\"is-style-intro\">This page is a brief introduction to the support and management of CHARGE syndrome from birth.<\/p>\n\n\n\n<p>It covers the range of health, educational and other professionals involved in early care interventions.&nbsp;<\/p>\n\n\n\n<p>There are links to other Sense CHARGE syndrome pages covering the medical management of specific conditions in more detail.&nbsp;<\/p>\n\n\n\n<p>You\u2019ll also find links to external sites for more detail on some of the surgical procedures included here, and other information.<\/p>\n\n\n\n<p>On this page:<\/p>\n\n\n\n<ul class=\"wp-block-list is-style-primary-bullets\">\n<li><a href=\"#specialist\">Specialist support from birth<\/a><\/li>\n\n\n\n<li><a href=\"#early\">Early intervention<\/a><\/li>\n<\/ul>\n\n\n\n  <div class=\"wp-block  box    is-style-textured-primary-tint-10  align-right  size-medium\">    <div class=\"acf-innerblocks-container\">\n\n<h2 class=\"wp-block-heading\"><strong>Sense is here for everyone with CHARGE syndrome<\/strong><\/h2>\n\n\n\n<p class=\"is-style-default\"><a href=\"https:\/\/www.sense.org.uk\/our-services\/support-in-your-area\/\">We offer support all over the UK<\/a>. Whether you need some expert advice, a place to socialise, or help with communicating or getting around, we offer something for everyone. Because no one should be left out of life.<\/p>\n\n\n\n<p class=\"is-style-default\">To find out what kind of support we could give you or your loved one, speak to one of our friendly team.<\/p>\n\n\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button is-style-secondary\"><a class=\"wp-block-button__link wp-element-button\" href=\"https:\/\/www.sense.org.uk\/information-and-advice\/information-and-advice-service\/\">Contact us<\/a><\/div>\n<\/div>\n\n<\/div>\n  <\/div>\n\n\n\n\n<h2 class=\"wp-block-heading\" id=\"specialist\"><strong>Specialist support from birth<\/strong><\/h2>\n\n\n\n<p>There are many ways of treating and managing the different symptoms of the condition.&nbsp;<\/p>\n\n\n\n<p>As symptoms of CHARGE vary greatly from one child to another, children will usually see many different specialists \u2013 this is known as a multidisciplinary team approach.<\/p>\n\n\n\n<p>This multidisciplinary team approach will give your child the best long-term care.&nbsp;<\/p>\n\n\n\n<p>Birmingham and Manchester have dedicated paediatric clinics for children with CHARGE syndrome. There is also an adult clinic in Birmingham.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\" id=\"early\"><strong>Early intervention<\/strong><\/h2>\n\n\n\n<p>As part of the early intervention to treat and manage your child\u2019s CHARGE syndrome, you and your child will probably work with many healthcare, educational and other professionals.&nbsp;<\/p>\n\n\n\n<p>These professionals might include:<\/p>\n\n\n\n  <div class=\"wp-block  box    is-style-textured-grey-tint-10\">    <div class=\"acf-innerblocks-container\">\n\n<ul class=\"wp-block-list is-style-primary-bullets\">\n<li>Audiologists (for hearing).<\/li>\n\n\n\n<li>Dietitians.<\/li>\n\n\n\n<li>Educational psychologists.<\/li>\n\n\n\n<li>Educators.<\/li>\n\n\n\n<li>Orthoptists (for sight).<\/li>\n\n\n\n<li>Ophthalmologists (for sight).<\/li>\n\n\n\n<li>Occupational therapists.<\/li>\n\n\n\n<li><a href=\"https:\/\/www.portage.org.uk\/\">Portage<\/a> (home visiting educational service for pre-school children with special educational needs and disabilities (SEND)\/early years teachers).<\/li>\n\n\n\n<li>Physiotherapists.<\/li>\n\n\n\n<li>Sign language tutors.<\/li>\n\n\n\n<li>Social workers.<\/li>\n\n\n\n<li>Speech and language therapists.<\/li>\n\n\n\n<li>Teachers of children who are deaf or hearing impaired.<\/li>\n\n\n\n<li>Teachers of children who are visually impaired or blind.<\/li>\n\n\n\n<li>Teachers of children who are multi-sensory impaired (MSI)\/deafblind.<\/li>\n<\/ul>\n\n<\/div>\n  <\/div>\n\n\n\n\n<p><a href=\"https:\/\/www.sense.org.uk\/information-and-advice\/life-stages\/childhood-and-school\/send-education-special-education-needs-disabilities\/\">Read more about special educational needs and disabilities (SEND).<\/a><\/p>\n\n\n\n<p>You can read more about the treatment and medical management of specific features of CHARGE syndrome and related difficulties on the following pages:<\/p>\n\n\n\n<div class=\"wp-block  slab    is-style-textured-primary-tint-10  align-full\">\n  <div class=\"wrap\">  <div class=\"acf-innerblocks-container\">\n<div class=\"grid  grid-flexbox  grid-3-cols\"><div>\n<div class=\"card\">\n  \n  <div class=\"card__content\">\n    <h2 class=\"card__title  h4\">\n              <a href=\"https:\/\/www.sense.org.uk\/information-and-advice\/conditions\/charge-syndrome\/charge-ear-hearing-loss-treatments\/\" class=\"card__link  link--stretched\">\n              CHARGE ear, hearing loss and treatments\n              <\/a>\n          <\/h2>\n\n    \n    <div class=\"card__description\">\n\t\t\t\n    <\/div>\n  <\/div>\n<\/div><\/div><div>\n<div class=\"card\">\n  \n  <div class=\"card__content\">\n    <h2 class=\"card__title  h4\">\n              <a href=\"https:\/\/www.sense.org.uk\/information-and-advice\/conditions\/charge-syndrome\/coloboma-treatments-management\/\" class=\"card__link  link--stretched\">\n              Coloboma, treatments and management\n              <\/a>\n          <\/h2>\n\n    \n    <div class=\"card__description\">\n\t\t\t\n    <\/div>\n  <\/div>\n<\/div><\/div><div>\n<div class=\"card\">\n  \n  <div class=\"card__content\">\n    <h2 class=\"card__title  h4\">\n              <a href=\"https:\/\/www.sense.org.uk\/information-and-advice\/conditions\/charge-syndrome\/charge-syndrome-speech-and-language-therapy\/\" class=\"card__link  link--stretched\">\n              Speech and language therapy\n              <\/a>\n          <\/h2>\n\n    \n    <div class=\"card__description\">\n\t\t\t\n    <\/div>\n  <\/div>\n<\/div><\/div><\/div>\n\n<div class=\"grid  grid-flexbox  grid-2-cols\"><div>\n<div class=\"card\">\n  \n  <div class=\"card__content\">\n    <h2 class=\"card__title  h4\">\n              <a href=\"https:\/\/www.sense.org.uk\/information-and-advice\/conditions\/charge-syndrome\/charge-syndrome-eating-and-drinking-difficulties\/\" class=\"card__link  link--stretched\">\n              Eating and drinking difficulties\n              <\/a>\n          <\/h2>\n\n    \n    <div class=\"card__description\">\n\t\t\t\n    <\/div>\n  <\/div>\n<\/div><\/div><div>\n<div class=\"card\">\n  \n  <div class=\"card__content\">\n    <h2 class=\"card__title  h4\">\n              <a href=\"https:\/\/www.sense.org.uk\/information-and-advice\/conditions\/charge-syndrome\/charge-syndrome-sleeping-difficulties\/\" class=\"card__link  link--stretched\">\n              Sleeping difficulties\n              <\/a>\n          <\/h2>\n\n    \n    <div class=\"card__description\">\n\t\t\t\n    <\/div>\n  <\/div>\n<\/div><\/div><\/div>\n\n<div class=\"grid  grid-flexbox  grid-2-cols\"><div>\n<div class=\"card\">\n  \n  <div class=\"card__content\">\n    <h2 class=\"card__title  h4\">\n              <a href=\"https:\/\/www.sense.org.uk\/information-and-advice\/conditions\/charge-syndrome\/charge-syndrome-communication\/\" class=\"card__link  link--stretched\">\n              Communication\n              <\/a>\n          <\/h2>\n\n    \n    <div class=\"card__description\">\n\t\t\t\n    <\/div>\n  <\/div>\n<\/div><\/div><div>\n<div class=\"card\">\n  \n  <div class=\"card__content\">\n    <h2 class=\"card__title  h4\">\n              <a href=\"https:\/\/www.sense.org.uk\/information-and-advice\/conditions\/charge-syndrome\/charge-syndrome-sensory-integration-problems\/\" class=\"card__link  link--stretched\">\n              Sensory integration problems\n              <\/a>\n          <\/h2>\n\n    \n    <div class=\"card__description\">\n\t\t\t\n    <\/div>\n  <\/div>\n<\/div><\/div><\/div>\n<\/div>\n  <\/div>\n<\/div>\n\n\n<div class=\"wp-block-hs-snippet \">\n\n\t\n  <div class=\"wp-block  box  ctaBox    is-style-textured-secondary-tint-10\">\n    <div class=\"ctaBox__row\">\n      <div class=\"ctaBox__content\">\n        <div class=\"acf-innerblocks-container\">\n\n<h2 class=\"wp-block-heading\">Support from Sense<\/h2>\n\n\n\n<p>We&#8217;re here for disabled people with complex needs and their families all over the UK. Get in touch to find out more about the services we offer.<\/p>\n\n<\/div>\n      <\/div>\n\n      <div class=\"ctaBox__cta\">\n        <a href=\"https:\/\/www.sense.org.uk\/information-and-advice\/information-and-advice-service\/\" class=\"button  button--primary\">Find out more<\/a>\n      <\/div>\n    <\/div>\n\n  <\/div>\n\n\n\n\t<\/div>\n\n\n<p>This content was last reviewed in July 2023. 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