{"id":6072,"date":"2022-04-20T12:55:58","date_gmt":"2022-04-20T11:55:58","guid":{"rendered":"https:\/\/www.sense.org.uk\/?page_id=6072"},"modified":"2022-05-05T14:18:44","modified_gmt":"2022-05-05T13:18:44","slug":"deafblindness-statistics-in-the-uk","status":"publish","type":"page","link":"https:\/\/www.sense.org.uk\/about-us\/research\/deafblindness-statistics-in-the-uk\/","title":{"rendered":"Deafblindness statistics in the UK"},"content":{"rendered":"\n\t<div class=\"wp-block-hs-group    align-wide\">\t\t<div class=\"acf-innerblocks-container\">\n\n  <div class=\"wp-block  box  ctaBox    is-style-textured-grey-tint-10  align-right  size-medium\">\n    <div class=\"ctaBox__row\">\n      <div class=\"ctaBox__content\">\n        <div class=\"acf-innerblocks-container\">\n\n<p>For more information on deafblindness, visit our information and advice centre.<\/p>\n\n<\/div>\n      <\/div>\n\n      <div class=\"ctaBox__cta\">\n        <a href=\"https:\/\/www.sense.org.uk\/information-and-advice\/conditions\/deafblindness\/\" class=\"button  button--primary\">Learn more<\/a>\n      <\/div>\n    <\/div>\n\n  <\/div>\n\n\n\n\n<p class=\"is-style-intro\">Someone is deafblind if they have both a hearing and sight impairment.&nbsp; <\/p>\n\n\n\n<p class=\"is-style-default\">Together this can impact on how the person accesses information, communicates and navigates around the physical environment.&nbsp; <\/p>\n\n\n\n<p class=\"is-style-default\">Some people are born deafblind (congenital) or it can happen later in life (acquired).<\/p>\n\n\n\n<hr class=\"wp-block-separator\"\/>\n\n<\/div>\n\t<\/div>\n\n\n\n\n<h2 class=\"is-style-default wp-block-heading\">How many deafblind people are there?<\/h2>\n\n\n\n<p>In 2022 it is estimated that there are over 450,000 people in the UK who are deafblind.&nbsp; This is expected to increase to over 610,000 by 2035. <\/p>\n\n\n\n<figure class=\"wp-block-table\"><table><tbody><tr><td><strong>Age<\/strong><\/td><td><strong>Male<\/strong><\/td><td><strong>Female<\/strong><\/td><td><strong>Total<\/strong><\/td><\/tr><tr><td><strong>0-19 Years<\/strong><\/td><td>18,243<\/td><td>5,136<\/td><td><strong>23,379<\/strong><\/td><\/tr><tr><td><strong>20-69 Years<\/strong><\/td><td>79,366<\/td><td>46,086<\/td><td><strong>125,452<\/strong><\/td><\/tr><tr><td><strong>70+ Years<\/strong><\/td><td>116,103<\/td><td>186,277<\/td><td><strong>302,380<\/strong><\/td><\/tr><tr><td><strong>Total<\/strong><\/td><td><strong>213,712<\/strong><\/td><td><strong>237,498<\/strong><\/td><td><strong>451,211<\/strong><\/td><\/tr><\/tbody><\/table><figcaption>These data are based on research commissioned by Sense and delivered by the Operational Research Society in 2017.&nbsp; This research used prevalence estimates from previous research completed by the Centre for Disability Research in 2010 and population estimates from the ONS.&nbsp;<\/figcaption><\/figure>\n\n\n\n<p>Sense commissioned research shows that:<\/p>\n\n\n\n<ul class=\"is-style-secondary-bullets wp-block-list\"><li>The estimated prevalence of people who are deafblind is higher among those aged over 70 than below and there are estimated to be more females than males in the UK who are deafblind.<\/li><li>It is estimated that Wales has a higher proportion of people who are deafblind than the other home countries with 8.6 people who are deafblind per 1,000 population in 2015. Northern Ireland has the lowest proportion with 5.3 people who are deafblind per 1,000 population in 2015.<\/li><li>Towns and cities tend to have lower estimated proportions of people who are deafblind than rural areas. Increases in people who are deafblind per 1,000 population between 2015 and 2035 tend to be smaller in towns and cities than in more rural local areas.<\/li><\/ul>\n\n\n\n  <div class=\"wp-block  box    is-style-textured-primary-tint-10\">    <div class=\"acf-innerblocks-container\">\n\n<h2 class=\"wp-block-heading\">Get in touch<\/h2>\n\n\n\n<p>For more information on this research please contact <a href=\"mailto:policy.research@sense.org.uk\">policy.research@sense.org.uk<\/a>.<\/p>\n\n<\/div>\n  <\/div>\n\n\n\n\n<h2 class=\"is-style-default wp-block-heading\">Usher Syndrome<\/h2>\n\n\n\n<p><a href=\"https:\/\/www.sense.org.uk\/information-and-advice\/conditions\/usher-syndrome\/\">Usher syndrome<\/a>&nbsp;is a genetic condition that causes deafblindness.&nbsp; There are around 10,000 people in the UK with Usher syndrome, according to Sense research from 2010.&nbsp;<\/p>\n\n\n\n<p> It is estimated that Usher affects around <a href=\"https:\/\/rarediseases.org\/rare-diseases\/usher-syndrome\/\">10&nbsp;in 100,000 people across the world<\/a>.&nbsp;Usher types I and II are the most common, with only <a href=\"https:\/\/medlineplus.gov\/genetics\/condition\/usher-syndrome\/#references\">2% of overall cases being type III<\/a>.&nbsp;<\/p>\n\n\n\n<h2 class=\"is-style-default wp-block-heading\">CHARGE syndrome<\/h2>\n\n\n\n<p><a href=\"https:\/\/www.sense.org.uk\/information-and-advice\/conditions\/charge-syndrome\/what-is-charge-syndrome\/\">CHARGE<\/a>\u00a0is a rare genetic syndrome that affects approximately <a href=\"https:\/\/www.chargesyndrome.org\/about-charge\/overview\/\">1 in every 10,000 babies born<\/a><a id=\"_ednref5\" href=\"#_edn5\">.<\/a> <\/p>\n\n\n\n<p>Whilst it affects many parts of the body, deafblindness is common with 80-90% of people with CHARGE having a vision impairment and <a href=\"https:\/\/rarediseases.org\/rare-diseases\/charge-syndrome\/\">more than 90%<\/a> of people having hearing impairment.<\/p>\n\n\n\n<p><a id=\"_msocom_1\"><\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>How many deafblind people are there? In 2022 it is estimated that there are over 450,000 people in the UK who are deafblind.&nbsp; This is expected to increase to over 610,000 by 2035. Age Male Female Total 0-19 Years 18,243 5,136 23,379 20-69 Years 79,366 46,086 125,452 70+ Years 116,103 186,277 302,380 Total 213,712 237,498 [&hellip;]<\/p>\n","protected":false},"author":16,"featured_media":0,"parent":5950,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_searchwp_excluded":"","footnotes":""},"content_label":[],"class_list":["post-6072","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/www.sense.org.uk\/wp-json\/wp\/v2\/pages\/6072","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.sense.org.uk\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.sense.org.uk\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.sense.org.uk\/wp-json\/wp\/v2\/users\/16"}],"replies":[{"embeddable":true,"href":"https:\/\/www.sense.org.uk\/wp-json\/wp\/v2\/comments?post=6072"}],"version-history":[{"count":0,"href":"https:\/\/www.sense.org.uk\/wp-json\/wp\/v2\/pages\/6072\/revisions"}],"up":[{"embeddable":true,"href":"https:\/\/www.sense.org.uk\/wp-json\/wp\/v2\/pages\/5950"}],"wp:attachment":[{"href":"https:\/\/www.sense.org.uk\/wp-json\/wp\/v2\/media?parent=6072"}],"wp:term":[{"taxonomy":"content_label","embeddable":true,"href":"https:\/\/www.sense.org.uk\/wp-json\/wp\/v2\/content_label?post=6072"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}