{"id":48945,"date":"2024-05-10T14:23:41","date_gmt":"2024-05-10T13:23:41","guid":{"rendered":"https:\/\/www.sense.org.uk\/?p=48945"},"modified":"2024-05-21T11:34:58","modified_gmt":"2024-05-21T10:34:58","slug":"how-to-claim-carers-allowance","status":"publish","type":"post","link":"https:\/\/www.sense.org.uk\/blog\/how-to-claim-carers-allowance\/","title":{"rendered":"How to claim Carer&#8217;s Allowance: What I learned from going through the process"},"content":{"rendered":"\n<p class=\"is-style-intro\">Yvette is a full-time carer to her daughter Rosey, 25. They live in Norwich. Rosey has cerebral palsy, scoliosis and epilepsy, and is also blind.&nbsp;<\/p>\n\n\n\n<p class=\"is-style-intro\">In this blog, Yvette shares what she\u2019s learned over the years about claiming benefits as the parent of a disabled child, in particular: Carer\u2019s Allowance.\u00a0<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" width=\"1024\" height=\"576\" src=\"https:\/\/www.sense.org.uk\/wp-content\/uploads\/2024\/05\/Yvette-film-still-putting-jacket-on-Rosey-1024x576.jpg\" alt=\"Yvette, a white woman with blonde and purple hair, putting a jacket on her daughter Rosey, a young woman with brown hair in a wheelchair.\" class=\"wp-image-48953\" srcset=\"https:\/\/www.sense.org.uk\/wp-content\/uploads\/2024\/05\/Yvette-film-still-putting-jacket-on-Rosey-1024x576.jpg 1024w, https:\/\/www.sense.org.uk\/wp-content\/uploads\/2024\/05\/Yvette-film-still-putting-jacket-on-Rosey-600x338.jpg 600w, https:\/\/www.sense.org.uk\/wp-content\/uploads\/2024\/05\/Yvette-film-still-putting-jacket-on-Rosey-768x432.jpg 768w, https:\/\/www.sense.org.uk\/wp-content\/uploads\/2024\/05\/Yvette-film-still-putting-jacket-on-Rosey-1536x864.jpg 1536w, https:\/\/www.sense.org.uk\/wp-content\/uploads\/2024\/05\/Yvette-film-still-putting-jacket-on-Rosey-500x281.jpg 500w, https:\/\/www.sense.org.uk\/wp-content\/uploads\/2024\/05\/Yvette-film-still-putting-jacket-on-Rosey-1600x900.jpg 1600w, https:\/\/www.sense.org.uk\/wp-content\/uploads\/2024\/05\/Yvette-film-still-putting-jacket-on-Rosey.jpg 1920w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<p>Since my daughter Rosey was born 25 years ago, every day has been a school day for me.&nbsp;<\/p>\n\n\n\n<p>Having a child with <a href=\"https:\/\/www.sense.org.uk\/information-and-advice\/conditions\/what-does-complex-disabilities-mean\/\">complex disabilities<\/a> requires you to learn a lot, and fast. I had just wanted to be a mum, but over the years I found myself becoming an expert in my daughter\u2019s rare medical conditions, and in the complicated benefits system.&nbsp;<\/p>\n\n\n\n<p>When Rosey was four and starting school, I applied for <a href=\"https:\/\/www.sense.org.uk\/information-and-advice\/benefits-and-money\/carer-benefits\/#carersallowance\">Carer\u2019s Allowance<\/a>. I\u2019ve been receiving it ever since.\u00a0<\/p>\n\n\n\n<p>I applied because I knew I wouldn\u2019t ever be able to work while I have Rosey. To this day, I give her 24\/7 care. I feed her through her PEG tube, and wake up to take care of her when she has seizures in the middle of the night.&nbsp;<\/p>\n\n\n\n<p>Carer\u2019s Allowance is the only thing available to me, but to be honest, it feels like an insult. It feels like pennies, and works out as less than minimum wage for round-the-clock caring.\u00a0<\/p>\n\n\n\n<p>It\u2019s also not a nice process to apply for it. Although it was over 20 years ago when I went through the process, I still remember how demoralising parts of it felt.&nbsp;<\/p>\n\n\n\n<p>I\u2019ve dealt with the DWP a lot throughout Rosey\u2019s life, and I\u2019m happy to share the wisdom I\u2019ve earned with other parents and carers out there.&nbsp;<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Gather all your information together<\/h2>\n\n\n\n<p>Before starting any benefits application, it\u2019s a good idea to have all the information and evidence you need to hand.&nbsp;<\/p>\n\n\n\n<figure class=\"wp-block-pullquote alignleft is-style-secondary-tint-10\"><blockquote><p>&#8220;I always tell new parents of children with complex disabilities: get yourself a good filing system. Try to keep everything in order. It can make it feel a bit less overwhelming.&#8221;<\/p><\/blockquote><\/figure>\n\n\n\n<p>I used to be a secretary, and so I\u2019ve got an iron-clad filing system at home for all of Rosey\u2019s documents. I keep everything \u2013 letters from the hospital, care plans, award letters.<\/p>\n\n\n\n<p>I always tell new parents of children with complex disabilities: get yourself a good filing system. Try to keep everything in order. It can make it feel a bit less overwhelming.&nbsp;<\/p>\n\n\n\n<p>For me, it helps me cope to approach it almost like I\u2019m running a small business. I put my secretary head on. It gives me strength to deal with professionals like consultants \u2013 and to go through processes like the Carer\u2019s Allowance application process.\u00a0<\/p>\n\n\n\n<p>Before you start your Carer\u2019s Allowance application, you need to have to hand:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Your name, address and phone number, and those of the person you care for.<\/li>\n\n\n\n<li>Your date of birth, and that of the person you care for.&nbsp;<\/li>\n\n\n\n<li>Both of your National Insurance Numbers, if you have them. (Or a Disability Living Allowance reference if the person you care for is under 16.) If you have a partner, you\u2019ll need theirs too.&nbsp;<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Your bank details.<\/li>\n\n\n\n<li>The details of your employment (if you\u2019re employed) or course (if you study).&nbsp;<\/li>\n\n\n\n<li>Details of any expenses you cover, such as extra care while you\u2019re working.<\/li>\n<\/ul>\n\n\n\n<p>It\u2019s also worth having to hand any evidence that might support your claim, or help jog your memory as you fill out the form.&nbsp;<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Prepare to answer difficult and invasive questions<\/h2>\n\n\n\n<p>You can <a href=\"https:\/\/www.gov.uk\/carers-allowance\/how-to-claim\">fill out the claim form online or by post<\/a>. Back when I applied, it was only by post!<\/p>\n\n\n\n<p>I remember finding the form heartbreaking and quite insensitive at times. You have to go over all the most difficult things.&nbsp;<\/p>\n\n\n\n<p>These forms make you feel like you are bidding for something you don\u2019t deserve. In reality, Carer\u2019s Allowance is much less than carers deserve.\u00a0<\/p>\n\n\n\n<p>The form can also be quite hard to understand, if you\u2019re not that academic (or just tired!). It can be a minefield. I think these days, some schools offer support to parents who are applying.<\/p>\n\n\n\n<p>Once you\u2019ve filled out the form, they say you need to allow three to six weeks for it to be processed. But it can take much longer \u2013 some have waited 15 weeks.&nbsp;<\/p>\n\n\n\n<p>If you don\u2019t get the decision you believe you deserve, you can stand up for yourself and appeal. I didn\u2019t have to challenge the decision about my Carer\u2019s Allowance, but I have had to make other challenges over the years.<\/p>\n\n\n\n<p>When we applied for Rosey\u2019s Disability Living Allowance, they said she didn\u2019t need care overnight. That was hysterical to me! I wrote an appeal, and I said: \u2018I\u2019d invite any member of your department to come and spend 24 hours in our house, and see how many seizures Rosey has overnight\u2019.&nbsp;<\/p>\n\n\n\n<p>We did get the right award in the end. But we had to fight.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Lean on the people around you, and ask for the support you need<\/h2>\n\n\n\n<p>Back when I applied for Carer\u2019s Allowance, we weren\u2019t offered support with the process.\u00a0<\/p>\n\n\n\n<figure class=\"wp-block-pullquote alignright is-style-primary-tint-10\"><blockquote><p>&#8220;When it comes to things like applying for benefits, it\u2019s hard work. You don\u2019t have to carry it all yourself. It\u2019s okay to need help sometimes.&#8221;<\/p><\/blockquote><\/figure>\n\n\n\n<p>But since then, we have been offered support from a keyworker \u2013 an NHS worker whose job is to support young people with complex needs. I\u2019ve also had a lot of support from my sister over the years. It makes the world of difference to have someone by your side when you\u2019re going through a difficult process.<\/p>\n\n\n\n<p>When I go to meetings or fill in applications about Rosey, my emotions are obviously heightened. After all, this is my child we\u2019re talking about!<\/p>\n\n\n\n<p>This can make it hard to fully digest the information that\u2019s being given.&nbsp;<\/p>\n\n\n\n<p>Having a keyworker, or even a family member, with you through the process means you have another person to take it in, and help you understand everything.&nbsp;&nbsp;<\/p>\n\n\n\n<p>As a carer or parent of a disabled child, sometimes you feel guilty. That can drive you to martyr yourself, and to try and take everything on alone. You just want to do everything you possibly can for your kid.&nbsp;<\/p>\n\n\n\n<p>I understand how that feels. But when it comes to things like applying for benefits, it\u2019s hard work. You don\u2019t have to carry it all yourself. It\u2019s okay to need help sometimes.&nbsp;<\/p>\n\n\n\n  <div class=\"wp-block  box  ctaBox    is-style-textured-grey-tint-10\">\n    <div class=\"ctaBox__row\">\n      <div class=\"ctaBox__content\">\n        <div class=\"acf-innerblocks-container\">\n\n<h2 class=\"wp-block-heading\">Support for carers<\/h2>\n\n\n\n<p>Find out more about benefits, rights and practical support available for carers of disabled people. <\/p>\n\n<\/div>\n      <\/div>\n\n      <div class=\"ctaBox__cta\">\n        <a href=\"https:\/\/www.sense.org.uk\/support-for-carers\/\" class=\"button  button--primary\">Get support<\/a>\n      <\/div>\n    <\/div>\n\n  <\/div>\n\n","protected":false},"excerpt":{"rendered":"<p>Yvette is a full-time carer to her daughter Rosey, 25. In this blog, she shares what she&#8217;s learned about claiming benefits as a carer.<\/p>\n","protected":false},"author":14,"featured_media":48953,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_searchwp_excluded":"","footnotes":""},"categories":[7],"tags":[],"display_author":[361],"class_list":["post-48945","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blog","display_author-yvette-clements"],"acf":[],"_links":{"self":[{"href":"https:\/\/www.sense.org.uk\/wp-json\/wp\/v2\/posts\/48945","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.sense.org.uk\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.sense.org.uk\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.sense.org.uk\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.sense.org.uk\/wp-json\/wp\/v2\/comments?post=48945"}],"version-history":[{"count":0,"href":"https:\/\/www.sense.org.uk\/wp-json\/wp\/v2\/posts\/48945\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.sense.org.uk\/wp-json\/wp\/v2\/media\/48953"}],"wp:attachment":[{"href":"https:\/\/www.sense.org.uk\/wp-json\/wp\/v2\/media?parent=48945"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.sense.org.uk\/wp-json\/wp\/v2\/categories?post=48945"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.sense.org.uk\/wp-json\/wp\/v2\/tags?post=48945"},{"taxonomy":"display_author","embeddable":true,"href":"https:\/\/www.sense.org.uk\/wp-json\/wp\/v2\/display_author?post=48945"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}