Sense supports people with a unique range of disabilities, and sometimes our experience or services aren’t suitable for everyone. When this happens, we recommend one of the following organisations to provide the specialised support needed.<\/p>\n\n\n\n
All these charities and services operate across the UK unless otherwise stated.<\/p>\n\n\n\n
Alstrom Syndrome UK<\/a><\/p>\n\n\n\n A patient-led organisation offering support services which include access to the AS specialist clinics.<\/p>\n\n\n\n Bardet-Biedl Syndrome UK<\/a> <\/p>\n\n\n\n Supporting people with Bardet-Biedl Syndrome, their families, and carers in the UK.<\/p>\n\n\n\n Batten Disease Family Association<\/a> <\/p>\n\n\n\n Supports families into the group of neurodegenerative diseases commonly known as Batten disease.<\/p>\n\n\n\n British Association for Counselling and Psychotherapy (BACP)<\/a><\/p>\n\n\n\n The professional association for members of the counselling professions in the UK.<\/p>\n\n\n\n CHARGE Family Support Group<\/a><\/p>\n\n\n\n A network of individuals, parents, families and professionals for people with CHARGE Syndrome.<\/p>\n\n\n\n ClearVision Project<\/a><\/p>\n\n\n\n A postal lending library of children\u2019s books designed to be shared by visually impaired and sighted children and adults.<\/p>\n\n\n\n Contact<\/a> <\/p>\n\n\n\n Helping families with disabled children with a free helpline, support services and parent guides.<\/p>\n\n\n\n Family Fund<\/a><\/p>\n\n\n\n Supporting families raising a disabled or seriously ill child or young person.<\/p>\n\n\n\n Guide Dogs<\/a> <\/p>\n\n\n\n A wide range of services with and without dogs to support people living with a vision impairment.<\/p>\n\n\n\n Henshaws<\/a><\/p>\n\n\n\n A charity in the North of England supporting people living with sight loss and a range of other disabilities.<\/p>\n\n\n\n Independent Provider of Special Education Advice (IPSEA) <\/a><\/p>\n\n\n\n Free and independent legal advice and support to families of children and young people with special educational needs and disabilities (SEND).<\/p>\n\n\n\n LOOK UK<\/a><\/p>\n\n\n\n Mentoring, events, forums and parent support for visually impaired young people. Based in Hereford, but work across the UK.<\/p>\n\n\n\n Macular Society<\/a> <\/p>\n\n\n\n Free information and support to those living with macular disease, along with their family and friends.<\/p>\n\n\n\n National Autistic Society<\/a><\/p>\n\n\n\n Support for autistic people and their families.<\/p>\n\n\n\n National Deaf Children’s Society (NCDS) <\/a><\/p>\n\n\n\n Expert support on childhood deafness across the UK.<\/p>\n\n\n\n The Norrie Disease Foundation<\/a> <\/p>\n\n\n\n Research and support to families living with Norrie Disease.<\/p>\n\n\n\n Retina UK<\/a> <\/p>\n\n\n\n Practical and emotional support for anyone affected by inherited progressive sight loss.<\/p>\n\n\n\n Royal National Institute of Blind People<\/a> (RNIB)<\/p>\n\n\n\n Practical and emotional support to blind and partially sighted people, their families and carers.<\/p>\n\n\n\n Royal Society for Blind Children<\/a> <\/p>\n\n\n\n Support, learning and development opportunities for blind and partially sighted children and young people in England and Wales.<\/p>\n\n\n\n Scope<\/a><\/p>\n\n\n\n Practical information and emotional support for disabled people.<\/p>\n\n\n\n The Seashell Trust<\/a><\/p>\n\n\n\n Support creating strategies, targets and individual programmes for children and young adults with complex needs, their families and carers.<\/p>\n\n\n\n SignHealth<\/a><\/p>\n\n\n\n Health, wellbeing, social care and advocacy support for Deaf people.<\/p>\n\n\n\n Stargardts Connected<\/a><\/p>\n\n\n\n Support community for those affected by Stargardt\u2019s disease.<\/p>\n\n\n\n Together for Short Lives<\/a> <\/p>\n\n\n\n Help or advice for anyone caring for a child with a serious illness.<\/p>\n\n\n\n Usher Kids UK<\/a> <\/p>\n\n\n\n Information and support for children, young people and their families living with Usher syndrome. <\/p>\n\n\n\n VICTA<\/a> <\/p>\n\n\n\n Activities and grants for young people who are visually impaired.<\/p>\n\n\n\n