This page covers treatments for Usher syndrome types 1, 2 and 3, and for retinitis pigmentosa. <\/p>\n\n\n\n
It also includes useful information for older people with Usher, and on specialist centres for genetic eye disease and dual sensory clinics. <\/p>\n\n\n\n
On this page:<\/p>\n\n\n\n
No, there is presently no cure for Usher syndrome, but research continues into the genetic causes of the condition and potential new treatments.<\/p>\n\n\n\n
The standard treatment for Usher type 1, which is apparent from birth, is to receive cochlear implants in both ears within the first two years of life. <\/p>\n\n\n\n
This makes it easier for children to develop speech and understand what people are saying without visual clues. <\/p>\n\n\n\n
Because Usher syndrome, especially type 1, is being recognised earlier in children, cochlear implants are being fitted much earlier. <\/p>\n\n\n\n
As a result, speech tends to develop normally in these children. <\/p>\n\n\n\n
Read more about<\/a> cochlear implants.<\/a><\/p>\n\n\n\n Patients with Usher types 2 and 3 benefit from conventional hearing aids, although they may get cochlear implants later in life if their hearing deteriorates further. <\/p>\n\n\n\n Read more about hearing aids.<\/a><\/p>\n\n\n\n For many older patients, whose hearing loss was not diagnosed in childhood, cochlear implants and hearing aids are not an option. <\/p>\n\n\n\n Instead, many of them use sign language to communicate. <\/p>\n\n\n\n For those with severe sight loss who can\u2019t use conventional sign language, hands-on signing is an alternative. <\/p>\n\n\n\n Read more about sign language and hands-on signing<\/a>, and find out more about other methods of communication<\/a>. <\/p>\n\n\n\n Treatment for retinitis pigmentosa focuses on relieving symptoms and making the best of someone\u2019s remaining sight. This includes: <\/p>\n\n\n\n Read more about vision aids<\/a> and assistive technology<\/a>.<\/p>\n\n\n\n Children with Usher syndrome should be assessed for special educational needs and disabilities (SEND) support. <\/p>\n\n\n\n This will allow for changes to be made at home and extra help in early years and school settings so that children can fulfil their potential and achieve independence in life. <\/p>\n\n\n\n Read more about SEND.<\/a><\/p>\n\n\n\n There are various specialist centres for genetic eye disease throughout the UK. <\/p>\n\n\n\n These centres can offer more comprehensive management of conditions, including: <\/p>\n\n\n\n The\u202fMoorfields Eye Hospital NHS Foundation Trust\u202fin London has the largest genetic eye service in the UK and has dedicated clinics for all forms of eye disease. <\/p>\n\n\n\n You have two options: <\/p>\n\n\n\n For an NHS referral, speak to your GP. <\/p>\n\n\n\n If you want to be seen as a private patient, you can book an appointment with a genetic eye specialist at one of the following:\u202f <\/p>\n\n\n\n Some specialist centres offer virtual consultations and arrange genetic testing remotely by sending blood or saliva kits to your home. <\/p>\n\n\n\n Dual sensory clinics are being established to improve the overall clinical experience for children with Usher syndrome who are usually seen in separate eye and hearing clinics. <\/p>\n\n\n\n Dual sensory clinics offer faster and more accurate diagnosis through extensive genetic testing and detection of visual symptoms at an earlier stage. <\/p>\n\n\n\n Being able to see all relevant specialists in one clinic visit also reduces the stress of multiple appointments with different specialists. <\/p>\n\n\n\n One of the first to offer a dual sensory clinic for children and young people with Usher syndrome is Great Ormond Street Hospital for Children in London. <\/p>\n\n\n\n If your child is already a patient at Great Ormond Street Hospital, talk to your consultant to get an internal referral.\u202f <\/p>\n\n\n\n If your child isn\u2019t a patient at Great Ormond Street Hospital, talk to your GP or local paediatrician. <\/p>\n\n\n\n This content was last reviewed in July 2023. We’ll review it again in 2026.<\/p>\n\n\nTreatments for types 2 and 3 Usher<\/strong> <\/h2>\n\n\n\n
Older people and Usher<\/strong> <\/h2>\n\n\n\n
Treatment for retinitis pigmentosa<\/strong> <\/h2>\n\n\n\n
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Usher syndrome and SEND<\/strong> <\/h2>\n\n\n\n
Specialist centres for genetic eye disease<\/strong> <\/h2>\n\n\n\n
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How do I get a referral to a specialist centre?<\/strong> <\/h3>\n\n\n\n
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Dual sensory clinics<\/h2>\n\n\n\n
How do I get a referral to Great Ormond Street dual sensory clinic?<\/strong> <\/h3>\n\n\n\n